Edited 1/9/2010 to add: Zyreal's dad posted in his blog today that for now a second bone marrow transplant has been put on hold indefinitely. I am still asking that if you are not already registered in the donor program to still please join. If in the near or distant future Zyreal does need a transplant it will be wonderful if there is already a match in the registry so that he doesn't have to wait at that time for a match to be located.
Now back to the original post:
I'm begging here. If you are of African descent (No matter what continent you live on) and if you are not in a National Marrow Donor Program PLEASE consider joining to help save Zyreal. Also please forward this message to anyone you know who might be able to help him.
Zyreal is an adopted 7 year old boy who suffers from Sickle Cell Anemia. He recently underwent a cord blood (stem cell) transplant to save his life but today his family found out the transplant failed. His damaged marrow is now regenerating damaged blood cells and platelets but he needs to find a match from another person before undergoing a second transplant attempt. A better match must be found ASAP.
Ethnicity is crucial. Any patient in need of a marrow transplant will most likely find a match within their own ethnic group so Zyreal needs more people of African descent to join the marrow donor program in case they are the one who is going to be able to save his life.
Joining the registry is virtually pain free. In almost all countries 4 cotton mouth swabs are used to brush the inside of your cheeks. Donating isn't pain free but it isn't nearly as painful as most people seem to think it is. Discomfort, if there is any at all in most cases is mild and short lived. You can learn more about the two donation methods by CLICKING HERE.
IN THE UNITED STATES
If you live in the United States please go to Be the Match and enter your zip code to locate a live drive in your area:
It takes 4 cotton swabs that you wipe on the inside of your cheeks to find out if you are the match that can help Zyreal. It can then take up to 10 weeks for the test to be processed. Zyreal cannot wait so please do not delay in locating a drive.
ALL OTHER COUNTRIES
There is also a list of international marrow programs at this link:
Please contact a program near you to locate a live drive. In most countries testing is simply swiping the inside of your cheeks with 4 cotton swabs. It can then take up to 10 weeks for the test to be processed. Zyreal cannot wait so please do not delay in locating a drive.
To Read Tami's Story from the Beginning
Just CLICK HERE. Her blog begins on March 12, 2009 with a post titled "Tami's Myelodysplasia Diagnosis." Then at the bottom of each post, click on the words "Newer Post" located just below the comments section on each page.